How did you know you had lupus?

Some of the most common signs of lupus are a rash and joint pain, says Konstantinos Loupasakis, MD, a rheumatologist with MedStar Washington Hospital Center, but symptoms can also include fatigue, hair loss, mouth sores, and fever. “There's a great range of manifestations we see with lupus,” he says.


What was your first lupus symptom?

A typical sign of lupus is a red, butterfly-shaped rash over your cheeks and nose, often following exposure to sunlight. No two cases of lupus are exactly alike. Signs and symptoms may come on suddenly or develop slowly, may be mild or severe, and may be temporary or permanent.

How do you find out if you have lupus?

Your doctor will look for rashes and other signs that something is wrong. Blood and urine tests. The antinuclear antibody (ANA) test can show if your immune system is more likely to make the autoantibodies of lupus. Most people with lupus test positive for ANA.


What does the onset of lupus feel like?

You may experience pain and stiffness, with or without swelling. This affects most people with lupus. Common areas for muscle pain and swelling include the neck, thighs, shoulders, and upper arms. Fever.

How long can you have lupus and not know it?

On average, it takes nearly six years for people with lupus to be diagnosed, from the time they first notice their lupus symptoms. A majority (63%) of people with lupus surveyed report being incorrectly diagnosed.


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Can a blood test rule out lupus?

No one test can diagnose lupus. The combination of blood and urine tests, signs and symptoms, and physical examination findings leads to the diagnosis.

When should you suspect lupus?

Rashes that develop on the face and upper arms after exposure to sunlight, unexplained fevers, and painful, swollen, or stiff joints are all common lupus symptoms — and are symptoms you should tell your doctor about, says Neil Kramer, MD, a rheumatologist at the Institute for Rheumatic and Autoimmune Diseases at ...

What organ does lupus affect first?

Kidneys About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus. Lungs About 50% of people with SLE will experience lung involvement during the course of their disease.


How does a person with lupus act?

Common symptoms include fatigue, hair loss, sun sensitivity, painful and swollen joints, unexplained fever, skin rashes, and kidney problems. There is no one test for SLE. Usually, your doctor will ask you about your family and personal medical history and your symptoms.

What is borderline lupus?

A doctor may use the phrase "borderline lupus" when symptoms or blood test results suggest lupus, but there is not enough information for a definite diagnosis.

What are the 11 indicators of lupus?

The 11 Signs of Lupus: What You Need to Know
  • A butterfly-shaped rash across both sides of the face.
  • Raised, red skin patches.
  • Sensitivity to light.
  • Ulcers in the mouth or nose.
  • Arthritis plus swelling or tenderness in two or more joints.
  • Seizures or other nervous system problems.
  • Excessive protein in urine.


What are the 4 criteria for lupus?

The ACR criteria include malar rash; discoid rash; photosensitivity (development of a rash after sun exposure); oral or nasal ulcers; arthritis of multiple joints; serositis: (inflammation of the lining around the lungs or heart); kidney disease indicated by protein or casts in the urine; neurological disorders such as ...

What can trigger lupus?

An infection, a cold or a viral illness. An injury, particularly traumatic injury. Emotional stress, such as a divorce, illness, death in the family, or other life complications. Anything that causes stress to the body, such as surgery, physical harm, pregnancy, or giving birth.

What age does lupus usually start?

The first symptoms of lupus usually occur somewhere between the teen years and the 30s and may be mild, severe, sporadic, or continual. Common general symptoms include fatigue, fever, and hair loss. Lupus can also affect individual organs and body parts, such as the skin, kidneys, and joints.


What is mild lupus like?

A tell-tale sign of lupus is a butterfly-shaped rash across the cheeks and bridge of the nose. Other common skin problems include sensitivity to the sun with flaky, red spots or a scaly, purple rash on various parts of the body, including the face, neck, and arms. Some people also develop mouth sores.

What can mimic lupus symptoms?

Here are the conditions that are most likely to mimic the symptoms of lupus and how to make sure you get the right diagnosis.
  • Rheumatoid arthritis. ...
  • Rosacea and other skin rashes. ...
  • Dermatomyositis. ...
  • Undifferentiated Connective Tissue Disease. ...
  • Hashimoto's disease. ...
  • Sjögren's syndrome. ...
  • Fibromyalgia.


Does lupus affect your hands?

Joint pain, swelling, and stiffness are common problems with lupus, especially in hands, wrists, and feet. The swelling doesn't damage your joints, but it can be painful. Lupus can also affect your muscles and cause weakness.


What joints does lupus affect first?

Joint pain is common in lupus, especially in the small joints of the hands and feet. The pain often moves from joint to joint. Joint pain, swelling and stiffness can be the main symptoms for some people with lupus.

Does lupus affect your bowels?

Lupus can slow the digestive process, and this can cause a wide variety of GI issues. Digestive problems may be the direct result of an attack by the immune system or from medications to treat lupus. These digestive difficulties include nausea, vomiting, diarrhea, or constipation.

What will a rheumatologist do for lupus?

Once lupus is diagnosed, your rheumatologist will work with you to come up with a treatment plan (including lupus medications) that makes sense for you. Rheumatologists help patients prevent and treat lupus flares and reduce organ damage and other problems.


What labs are abnormal with lupus?

Low C3 and C4 levels (below 60 for C3 and below 15 for C4 in the usual American measure), occur in active lupus, especially when the kidneys are affected or there is immune breakdown of blood cells (autoimmune hemolytic anemia, AIHA).

Does lupus start suddenly?

Signs and symptoms of lupus may come on suddenly in some people, and gradually over time in others. Signs and symptoms of lupus can include: Butterfly-shaped rash that covers the cheeks and bridge of the nose. Chest pain.

Can a CBC tell if you have lupus?

Many people with systemic lupus have abnormal CBCs. White blood cell counts can be low (leukopenia) due to lupus, immunosuppressive therapy, or the presence of a virus. High WBC counts may signal infection but also occur when individuals are on corticosteroids such as prednisone.


Who gets lupus the most?

SLE can affect people of all ages, including children. However, women of childbearing ages—15 to 44 years—are at greatest risk of developing SLE. Women of all ages are affected far more than men (estimates range from 4 to 12 women for every 1 man). Learn more about lupus in women.

What are the symptoms of lupus in a woman?

With that said, anyone with lupus can be affected by the following symptoms:
  • Joint swelling, pain, and stiffness. ...
  • A butterfly-shaped face rash. ...
  • Unusually high sensitivity to sunlight. ...
  • Fever. ...
  • Chest pain. ...
  • Hair loss. ...
  • Mouth sores. ...
  • Kidney problems.